The
Center for Rheumatic Diseases (CRD) was founded in
1996 by Dr Arvind Chopra, MD, primarily for promotion
of community based projects, creation of an ongoing
clinical and research database, and storage and maintenance
of patient records, in rheumatology and musculoskeletal
medicine. However, in time, CRD has become a center
for WHO-ILAR COPCORD (Community oriented program for
control of rheumatic diseases) Bhigwan
- Pune District (a village 100 kms from Pune,
Maharashtara, India), industry sponsored drug trials,
rheumatology oriented database-soft ware development,
research in modern medicine-Ayurveda interface, developing
validated quality of life/health assessment instruments
and certain laboratory based projects, and recently
NMITLI (New Millennium Indian
Technology Leadership Initiative, an undertaking of
the CSIR, Govt of India to achieve leadership position
in certain niche areas- Ayurvedic based drugs in this
case) Arthritis Project. In addition, CRD is the key
center for The
Bone and Joint Decade-India: National Action Network
2001-2010 (a program launched world wide under support
from WHO and UN, and endorsed by Govt of India) and
MAI (Mission
Arthritis India, a patient support group launched
in Pune).
Numerous
projects have been conducted with international collaboration
and support. Notable amongst these are antiarthritic
Ayurvedic drug development and trials,
validated modified Indian version of Health assessment
Questionnaire, antinuclear antibody detection under
light microscopy from filter paper blood clots, immunogenetic
HLA DR studies.
In
1999, the center was awarded recognition as a ‘research
institute’ for doctorate and post-doctorate
research studies in bio medical sciences, anthropology,
health sciences, basic medical science and behavioral
science by the University of Pune. Locally, CRD maintains
close academic links with University of Pune, BJ Medical
College (Dept. of Preventive and Social Medicine),
Inlaks and Budhrani Hospital and Bharati Vidyapeeth
Medical College (deemed university).
Being
a non-Government organization, CRD and its research
programs have been patronized by several senior and
distinguished citizens from Pune, including senior
academia. Some of these patrons collectively formed
Arthritis Research and Care Foundation (ARCF) as a
public charitable trust, and the same was registered
as a Society and Trust in Mar 2002. As per the ARCF
constitution and objectives, CRD and all its research
and community service programs have now become functional
components of the ARCF. As per the guidelines issued
by University of Pune and Govt of India, an ‘Ethics
Committee’ and a ‘Scientific
Advisory Board’ have been constituted by
the CRD.
ARCF
- CRD has also been recognized as a Scientific Industrial
Research Organisation (SIRO) by DSIR – Government
of India in 2002.
CRD
is constantly in the process to narrow the vast gap
present in the Indian data on Rheumatic Musculoskeletal
Disorders. Based on the Bhigwan COPCORD model, a similar
study was launched in Pune (Narayan Peth region) in
2004 under the auspices of BJD India. Over 9000 population
were screened and patients of RMSD were given free
of cost medical consultation and laboratory investigations.
CRD
also has a well organized library with journals
and books pertaining to Rheumatology. It also has
a good collection of Ayurvedic Texts.
The
database projects in CRD broadly cover community medicine
including the WHO –ILAR programs (COPCORD),
free community arthritis
camps, therapeutic evaluations/clinical
drug trials and development-in particular the
NMITLI Arthritis Project,
patient referrals, and basic laboratory sciences.
Recently a database for anti-nuclear antibodies and
HLA DR has been created. Numerous user friendly, flexible,
expandable and statistically worthy programs connected
with these latter projects have been developed. The
center has Internet connectivity and LAN, and has
executed major data management and on-line transfer
in the past with Boston Biostatistics Institute Inc.,
USA. Though SAS was used in the latter project, it
is the SPSS package that is popularly used in the
center for statistical purpose. Gradual transition
from FoxPro to Visual Basic, under the guidance of
a competent programmer, has led to the success of
well monitored database management. ’